Welcome to the Center for Sickle Cell Disease

Sickle Cell Adult Transition Website

Transitioning from pediatric to adult providers is an essential step in the care of teens and young adults with sickle cell anemia. The Howard University, Center for Sickle Cell Disease, Adult Transition Program works to educate children and young adults about their disease and personal medical history and develop skill sets required to navigate the adult health care setting.
 Learn more HERE

Sickle Cell Treatment Act - H.R. Bill 5124

It's time! The White House Petition to bring national attention to the Sickle Cell Treatment Act - H.R. Bill 5124 is up and it's time for us all to roll up our sleeves and get to work in obtaining signatures. 

SCDAA and the SCD Community is requesting that the President of the United States acknowledge and declare of Sickle Cell Disease as a national health priority; support legislative Bill - H.R. 5124 and return funding for SCD programs in the President's budget.

The petition is posted as of today and the official campaign launch will be Today Wednesday - September 24, 2014. Please start getting signatures right away! According to the White House instructions we have to:

  1. Obtain 150 signatures to get this petition publicly searchable and then;
  2. Secure an additional 99,850 signatures (a total of 100,000 signatures)

All within only 30 Days!

We believe that this will be a cinch! As a matter of fact we are challenging the SCD Community and friends to let's raise the bar and get even more signatures. Let's make a statement to President Obama and his Administration that Sickle Cell Disease is Real and deserves to be a priority!

Let's All Unite and Make this Happen! Let's Make Our Voice Heard for All Patients, Families, Providers and Communities Affected!

SIGN THE PETITION NOW! 
http://www.sicklecelldisease.org/index.cfm?page=news&id=70

Remember - We only have until October 22nd!! 

Ways to Insure Success!

  1. Forward the petition link with a personal message to as many patients, families and supporters as possible.
  2. Ask your local churches to join in the campaign and make Sunday announcements.
  3. Try to get interviews on your local radio stations and ask for support by providing the link.
  4. Join with your local sorority, fraternity and civic groups to increase signature efforts.
  5. Post the link with a message to your social networks (Facebook, Twitter, Instagram, etc)

 

Howard University's Center for Sickle Cell Disease (SCD) was founded by the late Dr. Roland B. Scott in 1971 to address the needs of patients and families in the Washington Metropolitan area affected by SCD. The Center is committed to a six-fold goal that includes comprehensive medical care, research, testing, education, counseling, and community outreach. Recently, the Center has expanded its clinical research program and developed a collaborative consortium with Children’s National Medical Center (CNMC) and in working together with Howard University Hospital and NIH we are the Washington area’s leading provider of patient services for SCD.

8th Annual Stomp Out Sickle Cell Walk

September 20, 2014 from 7:00am –Noon
On the DC National Mall - near 14th St., NW
between Jefferson and Madison Sts.

Register for this event today! We need you to
make the SOS Walk a success. Encourage
your family, friends and colleagues to join you.
Make a team and make a difference!

Download the full schedule!

 

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Learn About the History of Sickle Cell Disease

A Brief History of Sickle Cell Disease by William P. Winter, Ph.D.

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Sickle Cell and Anemia News (Archive)

  • Sickle Cell Disease In Adults Reversed By Blood Stem-Cell Transplant Regimen. A modified blood adult stem-cell transplant regimen has effectively reversed sickle cell disease in 9 of 10 adults who had been severely affected by the disease, according to results of a National Institutes of Health study in the Dec. 10 issue of the New England Journal of Medicine. The trial was conducted at the NIH Clinical Center in Bethesda, Md., by NIH researchers at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), the National Heart, Lung and Blood Institute (NHLBI), and the National Institute of Allergy and Infectious Diseases. News from NIH News (posted December 9, 2009).

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Last updated: October 2, 2014